Our Mission

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Our projects

UNESCO Science report

The UNESCO Science Report provides expert opinions and data on scientific capacity in more than 140 countries. The next edition will be available to the public in May 2021 without charge.

New manga book series: Athletes living with disabilities

Our new series of manga books will focus on athletes living with disabilities and highlight their lives as top ranking athletes.

Singularity: A philosophical concept of rare diseases

This program focuses on human singularity as a philsophical entity.

Science Webinars: rare disease diagnosis

These international webinars gather the world's leading scientists to discuss how to improve rare disease detection.

Scalable online courses on rare disease detection

A complete program to train students and healthworkers about rare disease dectection, molecular biology and infectious diseases.

Reaching children in underserved communities ‚Äč

Little Issue is a free magazine distributed in underserved communities to raise awareness about health issues.

Engaging journalists to report about rare diseases

Gathering journalists, patients and experts to raise awareness about rare disease detection.

Children’s books with their doctors

A professional artist collaborates with pediatric patients to bring their experiences to life.

Patient advocacy groups

Fondation Ipsen offers micro-grants to patient advocacy groups to help them promote their mission.

Rare disease: Needs assessment

We do not know the answers, and so we are asking the rare disease community what it needs.
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