Rare Diseases
Rare but not alone
Our Mission
Accelerate rare disease diagnosis
There are 7,000 rare diseases affecting 300 million people worldwide. 75% of patients are children. 1 in 2 patients do not have an accurate diagnosis. A quarter of patients wait 4 years to get a diagnosis. This program brings together world experts to improve this terrible situation.
We put
patients
first
Our Digital Platform
Making rare diseases more visible
Fondation Ipsen brings you a variety of content to help advance rare disease detection. Join us in webinars, videos, podcasts and educational courses to discover cutting-edge science and meet the world experts. Discover educational stories with your children, join us on a historical journey and advocate to improve the lifes of patients.
BookLab
Books for all
Fondation Ipsen’s publishing house publishes books for all ages. Come in and pick a book. It’s free !
What's new?
Life with asthma. Your control guide
A collective book containing many tips and practical sheets will help you manage your asthma